A Tubby Tabby, Three Konekos, and a Life with Hello Kitty and Autism

Archive for October, 2008

Guitar Hero-Kitty Rockin’ Momma

Friday, October 31st, 2008

This is a DIY project I did over the weekend, using a laptop vinyl skin I purchased online. I first created a template using tracing paper, and transferred the pattern on the vinyl. I also hand cut all the holes with a cutter. The entire project lasted more than hour but it was worth it. Now I rock to Guitar Hero inspired by Hello Kitty. What could be cooler than that?

Hello Kitty + Guitar Hero= Guitar Hero-Kitty Rockin’ Momma

“Take Me, I’ll Follow”

Thursday, October 16th, 2008

Some days, it’s hard to stop writing about everything going in on one’s life. And yet other days, there are things and events that are so poignant that words don’t do them justice, however much you try. This is one such time.

These last two weeks, as Alphonse recuperated from his illness, he has been less active and more prone to lying down silently, deep in thought. His two hour lunch, which also used to be time to de-stress from his morning activities, used to be a time for play and carousing. These days, he reclines in an old sofa and listens to music on a CD player as he whiles away his few hours of rest. Sometimes, he even falls asleep, and this is new as he hasn’t taken a nap since he was seven.

We noticed the changes in him but we felt that between his illness and the colder weather, perhaps, he was simply attuned to his body’s new needs. And then, we noticed something else. His nanny uses a cellular phone/mp3 player to give him alternative choices for music (a lot of old songs and some Original Pilipino Music and) and he has taken to one particular song. When this plays, he smiles and makes a grab for the phone to put it near his ear. And once the song is done, he hands it back to her and motions for her to play it again. As a result, this song is played continuously on a loop most afternoons, the only one that never fails to make him smile. The song? “Take Me, I’ll Follow.”

I just discovered this recently, and knowing this, I wondered with amazement how it is that Alphonse can speak to us without even saying a word. (Remember, his previous favorite was “Miracle Child?”) Last night, as I read the lyrics to his favorite song, the one he asks for over and over again to be played, it dawned on me that perhaps this song expresses feelings that he can’t verbalize. And with this understanding, I started to cry, more for joy than anything else, for this son who never needed the world before. 

Read the lyrics below and pretend it is Alphonse speaking:

Take Me, I’ll Follow

Tired of feeling all by myself
Being so different
From everyone else
Somehow you knew
I needed your help
Be my friend forever
I never found
My star in the night
Feeling my dream was
Far from my sight
You came along and
I saw the light
We’ll be friends forever
I can’t face the
Thought of you leaving
So take me along
I swear I’ll be strong
(If/when) you take me
Wherever you go
I wanna learn the things
That you know
Now that you
Made me believe
I want you to take me
‘Cause I long to be able
To see the things
That you see
know that whatever you do
I’ll follow you
Somebody must have
Sent you to me
What do I have
You could possibly need
All I can give is my guarantee
We’ll be friends forever
Repeat chorus
Teach me more in
Each passing hour
By your side
I know I will cover
Is it true that
You have the power
To capture this moment in time
Take me wherever you go
I wanna learn the things
That you know
Now that you made me believe
I want you to take me
‘Cause I long to be able
To see the things
That you see
Know that
Whatever you do
I’ll follow you

Physics Of Life

Wednesday, October 8th, 2008

I hope my son does not read this post (Pshew! He’s still preoccupied with his school projects, thank God!) as I do not condone or encourage truancy. But last week, well, last week was different. Alphonse was downed  by a severe sytemic viral illness that had us worried sick, and a few days later, perhaps from all that worrying, I followed suit. I would’ve taken pictures of the rashes in my face had I been imbued with a little more energy those days. And while I certainly tried to keep up with my household duties despite the fever, joint pains, headaches, and rashes, for the most part, I let my body recover, languishing in the warm feelings of playing hookey for a whole week.

A whole week. That to me was a slice of heaven.

Now that I am all better, I feel like inertia has set upon me. Newton’s First law of Motion tells us that “a body at rest will stay at rest unless an outside force acts on it,” and truth to tell, I still wait for that outside force to lift me from the doldrums. I scan the horizon of my life and don’t seen anything remotely coming. And so I wait.

Tonight, however, I have to rouse myself from my stuporous half-life and walk out the door and be a real human being for a change. Tonight, my Alphonse will be left in excellent care while A and I indulge in family time with just Alex. This boy needs it, I can feel it. And despite the resistance my body feels, despite the wishy-washy half-sentiments about the whole thing, I need to force down the rising tide of panic I feel and be there for him and for A.  

Time to wake up, girl. You are your own external force.